reading a paper on quality of life among 45-to-70-year-olds with Down syndrome:
“Individuals expressed a desire to be allowed to go to bed when they wanted to.”
😦
Imagine.
I lived in a room and board that failed the burrito test. (”If you’re not allowed to get up in the middle of the night to microwave a burrito, you live in an institution.”) No one stopped me from going to bed, but they did tell me I had to have my lights out by 10, and that I had to be out of the house by 10 the next morning. When I complained to my outpatient program that I needed more help than I was getting, they threatened me with board and care, where my cell phone would be taken away and I would lose contact with the outside world. My case manager sounded so damn smug, like he had caught me out, when he said, “if you’re really as helpless as you say, then you need to be in a board and care.” Like my only options were struggling to do things I couldn’t do, or surrendering my life to an institution.
When I tried to talk about these things with other people, they always rationalized it away. (I told my dad once that my caseworker was reading my e-mails as I wrote them, demonstrating extreme disrespect for my privacy, and he said, “Well, she’s probably making sure you don’t use the internet to goof off.” I was 22 years old.)
People tend to mock the idea that telling an adult when to go to bed, when to eat, etc., is a human rights violation, even though they would find it outrageous and absurd if anyone came into their lives to do the same thing to them.
And this is what people seem to think when they tell disabled activists we’re just not disabled enough to understand that some people really do need to be locked up and deprived of all autonomy.
OKAY SO I had a coworker who was otherwise a standard clueless Straight White Guy, but this dude loved his wife and he knew her real good. And his wife LOVES shitty grocery store icing. So the first thing she’d always do with any cake is shove her fingers into the corner and scoop off whatever abomination of a flower was on there and eat it off her fingers.
SO THIS DUDE GOES TO THE STORE AND HAS THEM MAKE A WHOLE CAKE OUT OF FROSTING Brings it home to his wife for her birthday She shoves her fingers into it and then they just keep going FROSTING ALL THE WAY DOWN He said the look on her face was the best thing he’d ever seen in his life It gives me hope that even a clueless Straight White Guy knew and loved his wife enough to give her the perfect birthday present cake frosting abomination
And I love to imagine the conversation he had to have with the grocery store bakery.
Listen. I want to tell you guys about the Dollar Tree. If you ever need to rebuild your life fast, you want a dollar tree. Everything in a dollar tree costs one dollar. No exceptions. Nothing has a price tag. Everything is one dollar.
This is Dollar Tree not Dollar General.
Dollar Tree looks like this:
Their stuff is off-brand but decent quality.
Here are some things you can buy at the dollar tree for one dollar:
– any kind of makeup- foundation, eyeshadow, lipstick, lip gloss, mascara, etc
Basically? If you ever get kicked out of your house or find yourself with a couple bucks and nothing else, get thee to a dollar tree.
All the dollar tree stores I have been in have some sort of medical aisle too. Its actually where I went first when my tooth broke for some off brand orajel (Works much faster and better than orajel imo, longer too if you put it on a cotton ball and keep it in the area) And sometimes even emergency temp tooth repair kits, which are at least $7 elsewhere. Dollar tree is a miracle.
I love Dollar Tree. When I first moved out this place saved me.
Every 20-something individual needs a Dollar Tree nearby.
Dollar Tree also sells PREGNANCY TESTS and yes they work! Go in and buy like 5 of them, don’t spend $25 on three at CVS, not worth your money and honestly has saved me TONS of anxiety.
Dollar Tree also takes EBT. I nearly cried when I discovered that, because of my strict dietary needs.